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HPCANYS Provider Showcase

HPCANYS is proud to introduce one of our many excellent Pediatric Palliative Care provider members; ‘The Children’s Hospital at Albany Medical Center.’ This Pediatric Palliative Care Program, located in Albany, New York has been a HPCANYS member since 2010 and in that time has grown substantially.

Children’s Hospital at Albany Medical Center is a 125-bed facility that serves as the referral center for all seriously ill or injured children from 25 counties in upstate New York and western New England. The hospital is the only medical facility in the region that maintains round-the-clock pediatric emergency services and a pediatric intensive care unit with 17 beds. Children’s Hospital also offers the region’s only child cancer program.

This video, funded by the ‘Brave Will Foundation’ explains more about the mission and goals and work of the Journeys program at Albany Medical Center.

News & Resources

  • Care Goals and Decisions
  • Concurrent Care for Children Implementation Toolkit
  • MOLST for Minors

Care Goals and Decisions for Children Referred to a Pediatric Palliative Care Program

Published data regarding specific patient goals of care in palliative medicine are beginning to accrue. However, very little has been published regarding the specific goals of care for children with complex and life-limiting conditions.

This article published in the ‘Journal of Palliative Medicine’ report the outcomes of a recent study with the objective of describing the goals of care for children with complex, life-limiting conditions elicited at the time of the initial palliative care consult and to assess the variables that may influence these goals.

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Concurrent Care for Children Implementation Toolkit: Section 2302 of the Patient Protection & Affordable Care Act (ACA)

This toolkit is useful for Hospice and palliative care providers seeking an overview of changes made to federal Medicaid law in 2010, as a part of healthcare reform, so they can provide quality care for eligible children and their families.

This Toolkit deals only with services that are paid for by state Medicaid programs for children who are eligible to be enrolled in Medicaid or Children’s Health Insurance Program (CHIP). This Toolkit does not address programs and services that might be available through private insurance programs or private pay.

Download the Concurrent Care for Children Implementation Toolkit

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Medical Orders for Life Sustaining Treatment (MOLST) for Minors

MOLST is a program designed to improve the quality of care patients receive at the end of life by translating patient goals for care and preferences into medical orders. MOLST is based on communication between the patient, his or her health care agent or other designated surrogate decision-maker, and health care professionals that ensures shared, informed medical decision-making.

The Department of Health has approved a physician order form DOH-5003 MOLST for use with adult patients and minor patients. MOLST can be used statewide by health care practitioners and facilities. NYSDOH has created a "Legal Requirements Checklist for Minor Patients" with instructions to assist health care professionals in completing the MOLST form with minor patients and their parents or other legal guardians with authority to make health care decisions on his or her behalf.

Download the checklist for minor patients .

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