About Pediatric Palliative Care

Pediatric Palliative Care ~ A Team Approach

Families of children diagnosed with a life limiting or terminal illness navigating through the system of care are often confronted with over utilization of acute care services, fragmented systems of care and difficulty in accessing services. Typically, children are referred to palliative care only when curative treatments are exhausted. However, experts advise that children can benefit from palliative care early in their courses of illness. Caring for children with life-limiting illnesses has extraordinary challenges; these children and their families need intensive support from the time of diagnosis, with hope for a cure, through bereavement if a cure is not attained. The ultimate goal of pediatric palliative care is enhancing quality of life for the child and family, supporting life and the power of choice without taking away hope.

Pediatric palliative care is an individualized plan of care with children and their families at the core. This model of care provides a holistic approach intended to manage pain and symptom concerns, provide physical comfort, coordinate necessary medical services, offer social supports for the entire family, and provide follow-up and bereavement care. Given parents' hopes and dreams for their children, it is understandable that families never want to give up hope when their child is facing a life-limiting illness. The ultimate goal of pediatric palliative care is enhancing quality of life for the child and family, supporting life and the power of choice without taking away hope.

Find a Pediatric Palliative Care Program or Provider

There are many extraordinary pediatric palliative care programs and providers in New York State. Visit our Provider Showcase page to learn more about some of the programs and services available to you and your family. Or, you may use the link above to search for a palliative care program for children by county across New York State. Unfortunately, not every county will have a children's program dedicated to life-limiting illnesses. If the county you are looking for is one of these, please contact the This email address is being protected from spambots. You need JavaScript enabled to view it. for assistance in finding a program that may serve your needs.

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