Federal Policy

Pediatric palliative care is supported by the Concurrent Care for Children provision of the Patient Protection and Affordable Care Act (PPACA). Section 2302, termed the “Concurrent Care for Children Requirement” (CCCR) amends the Social Security Act and requires that States continue the provision of medically necessary curative services, even after election of the hospice benefit by or on behalf of children eligible for Medicaid and children eligible for Medicaid-expansion CHIP programs. The implementation of this new provision is vitally important for children and their families seeking a blended package of curative and palliative services.

New York State Policy

Care at Home (CAH) I/II Pediatric Palliative Care Services Waiver

Care at Home (CAH) I/II is a Home and Community Based Services (HCBS) Medicaid waiver that enables physically disabled children to remain in the community instead of being institutionalized. The Department's waiver renewal, approved in 2009, included certain changes in eligibility as well as the addition of palliative care services designed to address end-of-life issues related to the child's illness.


Contact your Representatives

Legislative contacts are divided into two categories, state-level and national level. Each of the following links will take you to a site where you can put in some information about your location (like your zip code) and find out who represents you in government.