Care Goals and Decisions

Care Goals and Decisions for Children Referred to a Pediatric Palliative Care Program

Published data regarding specific patient goals of care in palliative medicine are beginning to accrue. However, very little has been published regarding the specific goals of care for children with complex and life-limiting conditions.

This article published in the ‘Journal of Palliative Medicine’ report the outcomes of a recent study with the objective of describing the goals of care for children with complex, life-limiting conditions elicited at the time of the initial palliative care consult and to assess the variables that may influence these goals.

Authors state that to their knowledge, “this is the first study specifically reporting the goals of care for children with complex, life-limiting conditions and for their families.” Conclusions indicate that children with complex, life-limiting conditions and their families referred to a palliative care service commonly verbalize goals related to health maintenance and independence. Anticipating this expectation may foster communication and improve patient care. The data developed through this study suggest that the early establishment of goals of care may be associated with changes in clinical practice that result in improved quality of care.

This article has been posted on the HPCANYS Palliative Care Center Page. If you are a member of the Association you may read the entire article under the ‘Current News, Information and Resource’ section.


Citation: Tamburro, Robert F., et al. (2011) Care Goals and Decisions for Children Referred to a Pediatric Palliative Care Program. Journal of Palliative Medicine, Vol. 14(5): 607-613. doi:10.1089/jpm.2010.0450.