Concurrent Care for Children Implementation Toolkit

Concurrent Care for Children Implementation Toolkit: Section 2302 of the Patient Protection & Affordable Care Act (ACA)

This toolkit is useful for Hospice and palliative care providers seeking an overview of changes made to federal Medicaid law in 2010, as a part of healthcare reform, so they can provide quality care for eligible children and their families.

This Toolkit deals only with services that are paid for by state Medicaid programs for children who are eligible to be enrolled in Medicaid or Children’s Health Insurance Program (CHIP). This Toolkit does not address programs and services that might be available through private insurance programs or private pay.

Download the Concurrent Care for Children Implementation Toolkit

MOLST for Minors

Medical Orders for Life Sustaining Treatment (MOLST) for Minors

MOLST is a program designed to improve the quality of care patients receive at the end of life by translating patient goals for care and preferences into medical orders. MOLST is based on communication between the patient, his or her health care agent or other designated surrogate decision-maker, and health care professionals that ensures shared, informed medical decision-making.

The Department of Health has approved a physician order form DOH-5003 MOLST for use with adult patients and minor patients. MOLST can be used statewide by health care practitioners and facilities. NYSDOH has created a "Legal Requirements Checklist for Minor Patients" with instructions to assist health care professionals in completing the MOLST form with minor patients and their parents or other legal guardians with authority to make health care decisions on his or her behalf.

Download the checklist for minor patients.

Pediatric Concurrent Care Continuum Briefing

The Mary J. Labyak Institute for Innovation at the ‘National Center for Care at the End of Life’ has offered this informative pediatric-focused Continuum Briefing. It provides:

  • Definition of pediatric palliative and/or hospice care;
  • An overview of Concurrent Care for Children provision in the Affordable Care Act (ACA);
  • Identification of the barriers for pediatric palliative care that are not addressed even with the provision for concurrent care in ACA;
  • Key strategic opportunities for hospice and palliative care providers to expand the care continuum for children living with life-limiting or life-threatening conditions and their families.

Download the Pediatric Concurrent Care Continuum Briefing